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Riley Cystic Fibrosis Center Home
Flu Update from our CF Center Director
What is CF?
Diagnosis of CF
Newborn Screening
What to Expect at a Visit
Respiratory Care
Infection Control
Nutrition Care
Medications
What to do When You're Sick
Insurance/Reimbursement
Research
Quality Initiative
School/Daycare Information on CF
Transition to Adult Care
Upcoming Events/Educational Opportunities
Photos
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Every patient's visit will be based upon their individual needs, but the following are some things you may expect to happen when at a CF Clinic appointment:
Check – In with Receptionist
- We will know you have arrived
- Your opportunity to provide us with any updates in information, such as change of address, change of phone, or change of insurance
Measurement of Weight and Length/Height
- This is always completed without shoes.
Testing
Pulmonary Functions
- Spirometry
- Oximeter reading
Laboratory
- Blood work which may include:
- Vitamin Levels
- Liver Function
- Urine
- Sputum or respiratory culture
- Stool
- Fecal elastase, to assess pancreatic function
X-Ray/Radiology
Meet with the Following Disciplines
Physician
- Medical exam and review of systems
- Prescriptions for any new or continued treatment plan
Nurse
- Review of medications
- Health history
- Throat culture
- Flu shot
- Teaching and/or review of Action Plans
Dietitian
- Review of weight and BMI status
- Review of eating practices
- Review of pancreatic enzymes and vitamins
- Stool/GI history
- Recommendations for improving/maintaining nutritional status
Respiratory Care
- Review of respiratory treatments and medications
- Review of order of therapy
- Recommendations for improving/maintaining respiratory status
Social Worker
- Assistance with insurance/financial concerns
- Assistance with personal concerns that relate to CF
Research
- Available to review studies you may enroll in to benefit those with CF
Check Out
- Make your appointment for your next visit
- You will receive a summary of your medications
Follow Up Letter
- Approximately 1-2 weeks after your clinic visit, you will receive a letter that summarizes our recommendations for your treatment care plan
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