Riley Cystic Fibrosis Center

Riley Cystic Fibrosis Center Home

Flu Update from our CF Center Director

What is CF?

Diagnosis of CF

Newborn Screening

What to Expect at a Visit

Respiratory Care

Infection Control

Nutrition Care

Medications

What to do When You're Sick

Insurance/Reimbursement

Research

Quality Initiative

School/Daycare Information on CF

Transition to Adult Care

Upcoming Events/Educational Opportunities

Photos

Our Center

The Riley Hospital for Children Cystic Fibrosis Center has been serving families in Indiana and midwest states for over 30 years. Our center is the only Cystic Fibrosis Center accredited by the Cystic Fibrosis Foundation in the state of Indiana. Our Cystic Fibrosis Team at Riley works closely with the Cystic Fibrosis Clinics at St. Joseph Regional Medical Center in South Bend, Lutheran Hospital in Ft. Wayne, Deaconess Hospital in Evansville, and the Adult Cystic Fibrosis Center at Indiana University Hospital in Indianapolis.

Clinic Visits

Each person with Cystic Fibrosis (CF) is seen by a primary CF physician at every visit. Appointments at our CF Center are scheduled every two to three months; more frequently as needed. Things to expect at each visit are pulmonary function testing (for children 5 and over) and review of airway clearance with a respiratory therapist; review of medications and education sessions with nurses who specialize in CF; nutritional evaluation and assessments by the dietitian as needed, and access to a social worker who specializes in care of the family with CF. Once a year we will perform a comprehensive evaluation which will include additional testing to monitor vitamin levels, liver function testing, and overall health. After each visit, you will receive a written summary of our findings and recommendations through the mail.

Infection Control

We place a very strong emphasis on infection control at our Cystic Fibrosis (CF) Clinic. All of our team members will put on a cover gown and gloves upon entering your examination room. Upon leaving the room the team member will remove their gown and gloves and clean their hands with alcohol based hand sanitizers that are provided inside the examination rooms and outside of the examination rooms. All patient care rooms are sanitized between each patient. To further control infection, our clinic is well stocked with hand sanitizers and tissues for discarding of secretions. We also have a spacious waiting room to allow ample distance between patients. We would like all of your visits to our clinic to be efficient and rewarding, and would recommend you bring a few activities for yourself/child such as magazines, books, or a small toy. We do not have shared books or toys in or clinic area due to infection control concerns.

Contact Us

We look forward to serving your needs at our Cystic Fibrosis Center and are happy you have visited our website. If you would like to contact us, our phone number is 317-274-7208.